Latest Milestone: Hospice Research

November 21st, 2018

Icebergs Ahead

I am working on Thanksgiving dinner for two.

I have a great tip for anyone who drinks eggnog. I’m too lazy to make my own, so I buy the store stuff and doctor it if necessary. Adding more vanilla and nutmeg can help. That’s not the tip.

I have put several different spirits in eggnog. Bourbon. Brandy. Probably rum. This week I tried something new, and it turned out to be better than anything else I had tried. I had to pick up some Grand Marnier for my cranberry relish, and it was sitting on the counter while I poured myself an eggnog. The wheels turned.

It’s excellent. I filled a mug halfway, added Grand Marnier, and filled it the rest of the way. I dusted the top with nutmeg. I can’t recommend it highly enough. My guess is that an XO brandy would be even better, but to spend $200 per bottle for something you put in eggnog is to meddle with the primal forces of nature.

Grand Marnier is one of those things that doesn’t fit in just everywhere. You certainly wouldn’t want to drink it straight. It’s good for things like injecting orange sections or strawberries you intend to dip in chocolate. It’s also an ingredient of crepes Suzette. Now I know of one more use for it.

I hope the relish comes out good, because I had a little incident with the pecan pies. I misread the list on the Karo bottle, and I put in three times as much vanilla as I was supposed to. I have a feeling it will be better this way, but I’m still kicking myself [Note: it was wonderful.].

In other news, I called my dad’s doctor today and said I wanted information about hospice evaluations. I also called a hospice that was recommended. My friend Mike is a hospice exec, and he told me I needed to get on this now, before things really get crazy. He kept pushing me to do it. I think he’s used to hearing about people who were in denial and kept putting it off. That’s not me. Half of my family is dead, and I accept death as part of life, so I don’t shy away from death-related responsibilities.

When you get old and need a lot of assistance, you eventually become eligible for hospice care. They have a bunch of criteria. Can you walk? Can you communicate? They look you over and make a decision. If you fail, you get hospice care, and Medicare pays for it. That’s the test I’m trying to get for my dad.

I have always thought of hospice care as something you receive in a hospice, but there is more to it than that. You can receive hospice care in your own home. That’s what I’m shooting for right now. They’ll move equipment in and send people to help you bathe and so on.

Mike thinks my dad is ready. I’m not so sure. Some sources say you can get hospice care if there is a good possibility you will die during the next 6 months. Others say you get it if you’re expected to die during that time. My dad could die during the next 6 months. I have a feeling he will. But he could make it another 5 years, and no physician has flatly stated he is likely to go within 6 months.

I called the hospice Mike recommended, and they told me they wanted a referral from my dad’s doctor, so I left a message at the doctor’s office. Maybe we can get an appointment or phone consultation next week.

Mike says doctors hate to recommend hospice care. He says they hate to talk about death. I think that’s true. I don’t think any doctor ever told my mother she was terminal.

I don’t know why they won’t talk about death. I hate to think it’s because they make so much money on futile efforts to prolong life. Maybe they just don’t want to be involved in the discussion, because they don’t want responsibility. If that’s the case, they should man up. When you get a medical license, you agree to deal with every aspect of your job.

Maybe they don’t talk about death because they’re afraid of it, and they assume everyone else is, too. Solid Christians tend to have little fear of death. Most people scared and repelled by it. Most doctors aren’t solid Christians.

It would be nice to have people come every day and deal with my dad. He doesn’t have the kind of respect for me that he has for strangers, so they would be able to get a lot more done than I can.

His mobility is not what it was two months ago. At some point within the next three months or so, I expect him to start requiring so much help getting around, sitting, and standing, that we have to come up with a new solution. Will it be new devices? Assisted living? A move to a hospice? I don’t know. I know I can’t carry him around, and I’m not going to start helping him in the shower or on the toilet. That’s too much. You do those things if you live in India or Sudan, on ten dollars a month. Here, you look for professional help.

Some people seem to think changing a parent’s diapers or washing their private parts is a beautiful bonding experience. Not me. I think an ordeal like that is an insult from Satan. I’ve already seen way more than I want to.

My friend Amanda has offered to stay with him if I need to travel to Miami. Today I realized that’s off the table. He is starting to have problems that go beyond what you can allow a friend to deal with. The next time I travel, it will have to be Visiting Angels or some other business.

The more I think about it, the more I think physical illness is better than dementia.

When a relative dies from cancer, at least you can still interact with him. You can still have conversations. The patient can help you plan and react. He can understand what’s happening to him. He can grow. He can atone.

With dementia, it’s like half of the person has departed for good, and you’re left with the other half. It’s like the executives have left the building, and you get to talk to the janitors and the answering service. Once it really sets in, you can’t discuss the problem with him in any meaningful way. That’s especially true when the patient is a master of denial, like my dad. He sees a dementia diagnosis as a slander to be vigorously refuted.

If my dad had cancer, we could still talk. He could help me with his care. Spending time with him wouldn’t be work. I wouldn’t have to get away every day and be alone in order to get over dealing with him. At the end, we would be able to say important things to each other. Vascular dementia may leave him with the mind of an infant, so when he dies, he may not be able to communicate or understand at all. That’s how his sister went.

If I get any useful results from my hospice inquiries, I’ll write about it. Maybe I can help other people prepare better than I did.

3 Responses to “Latest Milestone: Hospice Research”

  1. Mike Says:

    Thanksgiving was a chore when my mom was dying. She loved cooking for a giant crowd most of her life and it pained her so much when she couldn’t do it. I BBQ’ed a turkey this morning. Couldn’t help but think of her.

    Still keeping you both in prayer.

  2. Steve H. Says:

    Thanks, Mike. Will do the same for you today.

  3. Ruth H Says:

    You need to be trying out the Visiting Angels now, before you are in real need of them. I do not know if they do call ins.
    My sister used them for a while. She had a difficult time getting anyone satisfactory. Some were not very smart. No other way to put it.
    I suggest you get a doctor or PA recommended sitter to try beofre you go the visiting Angel route. As I understand it they come for a number of hours per day, and either every day or scheduled days.
    Fortunately she has improved and a very good housekeeper once a week is working for her.

Leave a Reply; Comments are Moderated and Not All Are Posted. Keep it Clean.